This past week the Brain Injury Association of America (BIAA) attended
a round table with Jean Slutsky, who serves as both Chief Engagement and
Dissemination Officer and Program Director of the Communication and Dissemination
Research Program at Patient Centered Outcomes Research Institute (PCORI).
An independent research institute authorized by Congress in 2010 and governed
by a Board of Governors representing the entire healthcare community,
PCORI’s mission is to seek answers to questions about what healthcare
approaches are most valuable and effective for patients based on their
concerns and circumstances.
PCORI continually seeks input from the public to help guide and shape the
work they do, and there are a number of ways that members of the public
can get involved. PCORI asks for “meaningful engagement” from
the public in some of the following ways:
- Reviewing funding applications
- Joining an advisory panel
- Suggesting a patient-centered research question
- Participating in PCORI events
- Becoming a PCORI ambassador
- Providing input
We at Scarlett Law Group are proud of the work that both the BIAA and PCORI
do to help improve the patient experience. As advocates for those who
have suffered brain injuries, we believe that PCORI’s work is another
way that justice can be obtained for those who need it most.
To learn more about how to get involved with the Patient Centered Outcomes
visit them online.
Please also take a moment to fill out the BIAA survey mentioned in our
previous blog to give input on the efficacy of the Affordable Care Act for brain injury
victims, families, caregivers, and advocates.